Notes on
: Lewis,
C.
And Arday, J. (2023) We'll see
things they'll never see:
Sociological reflections on race,
neurodiversity and higher
education. The Sociological
Review, 71 (6). DOI: 10.11
77/100380261231184357.
Dave
Harris
NB
now a book with the same name! It got
a £20k advance from Princeton.They
gave the advance to charity
This
claims to offer 'sociological
reflections' using 'dialogical
knowledge production and
collaborative auto ethnography'
[they had a
chat]. They show how race and
neurotypical hegemony affect black
neurodiverse scholars and exposes
them to double jeopardies faced
with the 'hegemonic practices of
the white Western academy' they
want
to discuss 'value, meritocracy and
elitism', and expose and dismantle
'neurotypical hegemony'. Existing
research and anecdotes 'points to
a pattern of general whitening of
how we understand neurodiversity
in academia' but they claimed that
'as black
neurodivergence sociologists,
we'll see things they'll never
see'
[apparently a modified Oasis
title]
Singer
in 1996 coined the term
neurodiversity and wanted to
discuss its
politics, but this got little
support. We know that certain
scholars
are subordinated and excluded
[citing Bhambhra]. Sociology
provided
tools for Singer but did not offer
her an intellectual home. They
want to go further and emphasise
'negative racialization and
neurotypical hegemony' operating
in tandem. Arday has already
established [!] that
academic research and writing
'structurally marginalise a
plethora of
students and staff'[usual
references]. Here the focus is on
'neurotypical notions of academic
excellence'(1300)
They
use a hybrid of black feminism
cultural and disability studies
and
drawn their own experiences,
drawing on their sociological
imaginations as in Mills. This
makes it interdisciplinary and
capable
of generating a holistic overview,
though disciplined within
sociologies of social justice,
fitting it to racialised class and
gender structures [lots of
references to Arday and to.Lewis]
Black
feminist thought connects theory
to praxis.[no problems then]
They
swing between their own lived
experiences and sociological
processing, showing that the
personal is the political and so
is the
academic. In particular they are
aware that professional and
academic
processes can replicate oppressive
structures so sociology needs to
take seriously the ways in which
structurally produced power
dynamics
are intensified when it comes to
knowledge production, how black
subjectivities are 'facilitated by
the racialization of neurotypical
hegemony' (1301).
First
they need to discuss the politics
of neurodiversity and its
racialization. 1995
disabilities discrimination did
provide a legal
obligation to deliver a reasonable
adjustment and this did help,
including shifts in HEI's, and
flexible ways of learning.
Reasonable
adjustment means ways of learning
and communicating must be impacted
by neurodivergence threats and
this draws attention in turn to
past
exclusion. There is still an
obstacle to a socially just
education
system provided by University
cultures which are 'founded and
grounded in racist, classist and
ablest exclusions in the names of
hierarchy of excellence' (1302).
For
Madriaga et al (2011) this is
'continuous institutional
endorsement
of eugenics', a culture of
normalcy embedded in 'everyday
eugenics'
comparing ideal students to
defective or impaired ones. Others
have
stressed the embedded negative
attitudes towards neurological
difference and the need for a
critical pedagogy rejecting
'normative
ideation is of academic
excellence'.
The
politics of neurodiversity have
become a 'potential proxy for
neoliberal policy agendas' in
universities, for example where
autism
advocacy becomes a commodity to be
bought and sold in the marketplace
and in research [citing
Runswick-Cole 2014]. The politics
of
representation in neoliberal
universities can make things worse
and
perpetuate notions of sameness and
difference, discourses of the
valued subject, discourses that
individualise neurodivergence
people
even though they are exonerated
from reproach [('blame the brain')
—
Runswick–Cole again]. Emphasis on
the extraordinary capabilities of
the neurodiverse can even
commodify neurological difference
[autists
and programming].
We
must not be distracted from
interrogating 'the omnipresence of
neurotypical hegemony'. But we
must also see how feasible it is
to develop
socially just frameworks, given
that people already in academia
are
peers, reviewers colleagues and
managers, requiring a [suitable]
politics.
Neurotypical hegemony is
being increasingly exposed and
critiqued,
especially its connection to 'the
social functioning of
anti-blackness'. (1303) Pickens
(2019) is one such scholar,
addressing the coproduction of
racism and ablism, through
discussion
of black madness as opposed to
enlightenment rationality.
Radulski is
another [the reference here is to
Hall et al 1978]. There are 'two
key structural processes'
producing double jeopardy.
The
pervasiveness of neurotypicality
draws on the notion of hegemony in
both Gramsci and Hall — it is
'(socially) produced within civil
society… key social institutions
(media, education and religion)
become integral to the formation
of people's identities, which
ultimately contribute to the
conditioning of ideological power
that
regulates ideas, values and social
norms' [no references, sounds like
Hall in its typical combination of
Gramsci and Althusser — or a
summary of Hall]. Hegemony
socially sanctions neurotypical
positions
'with the consent of those who
accomplish, as well as those who
are
denied, this most tolerated
status' [reference to Hall 1986 —
but I
found a reference to 'most
tolerated status' in the book, and
a
Google search attributed it to a
Bristol University piece on FGM].
'...civil society routinely
consents to normative iterations
of
disability and neurodiversity',
apparently drawing on Leonardo and
Broderick (2011) for support.
neurotypical hegemony also
marginalises white
neurodivergents, although it is
heightened for
negatively racialised people.
(1304).
Black
intellectual thought has been
excluded within the professional
culture of sociology [citing Arday
et al. 2021], as Bhambra and
Holmwoo argue for Dubois. Black
feminist practice and theory has
also
been unsighted. This has begun to
be addressed [including good old
Leonardo and Broderick, and
Coard]. Fierros and Conroy (2002)
refer
to a double jeopardy where people
experience 'the toxic fusion of
racism and neurotypical
hegemony'.[]Fand C could be in L
and B]
They
have drawn on black feminist
dialogue and critique, and
embraced
different ways of knowing, fully
compliant with their need to
develop
a more inclusive scholarly space.
They draw on bell hooks on
intellectual openness and dissent,
and this links with exclusionary
forms of communicating knowledge
'that we stress can be unwelcoming
to neurodiverse scholars' (1305).
They
began collating and recording
discussions in 2022, based on
their
friendship and common experiences
[although Lewis has ADHD,
dyspraxia
and dyslexia, and Arday has
'hybrid autism, Asperger's
syndrome and
global development delay and is
also dyslexic'. They notice first
whitening of understandings of
neurodiversity [L and B again],
which
they think is associated with
'eugenic normalcy associated with
academic excellence' combined with
a 'structurally sponsored
hierarchy that is both racialised
and classed'. This is particularly
marginalised black neurodivergence
people via discourses that 'centre
myths about intelligence, deviance
and meritocracy'. They have to
counter these as a result of their
methodology.
They
draw on useful dialogical based on
black feminist methodologies and
practices [citing some collective
or other, and Parnell – Perry and
Michel 2020]. They claim that
their own experiences can lead to
a
structurally focused analysis of
how neurotypicality becomes
'institutionalised and synonymous
with academic excellence' (1306).
They do this by censoring the
voices of those excluded, which
they
see as the result of the elitist
nature of their disciplines even
among researchers.
They
use Collins on 'dialogical
knowledge production' grounded in
Mills,
which tries to incorporate the
social world history and biography
in
conversation, but in an engaged
all. They drew on recorded
conversations and WhatsApp voice
notes, drawing on their
experiences
as both students and staff,
focusing on the racialization of
neurotypical hegemony. They were
friends founded on their work
together in
something called Leading Routes .
they also partly used auto
ethnographic methods, citing
Boylorn and Orbe And Denzin, and
Toyosaki (2018) who talked about
the experience of racism in a
predominantly white university and
its emotional toll, completed with
surviving and maintaining hope.
After all they did carry on
employment as scholars. They hope
this will help other neurodiverse
staff and students to relate, to
compile multiple narratives about
race and neurodiversity
Adaptation:
masking and camouflaging
Both
masking and camouflaging are
supposed to be common for autism,
although masking is often linked
with stress and mental illness.
Only
one of them is autistic but it
became fundamental to the dialogue
is
a part of a general adaptation
[followed by a quote from Arday
which
includes 'for example, 90% of the
time I don't know what's going on
but I am having to pretend I know
what's going on. And I don't
understand what people are saying.
So because of the processing delay
takes me ages to understand. But
normally I understand about two
days
after the meeting… What restricts
me professionally speaking is
that I just can't be myself' [it
is this inability to be himself
that
seems to be particularly painful,
supported by a quote that
constructing identities is hard
work — for everybody surely?]. A
quote from Lewis says she needs
space to be different. Arday
further
complains that workplaces are not
modified for people like him.
These
reflections are 'poignant' (1308)
and they were struck by how little
consideration is given to their
needs. Some departments had
generated
more inclusive cultures but
overall 'many everyday procedures
in
academic life writing,
teaching and researching,
conversation, reviewing, being
reviewed and
collaborating) continue to be
shaped by neurotypical hegemony'
[precious].
Racialization
of adaptation and double
jeopardy
There
are also processes of
anti-blackness that systematically
exclude and
co-opt them despite superficial
inclusiveness. There are
concessions
but these 'deplete our mental
health' and are accompanied by
precarious employment [reference
to Arday inevitably]. There may be
negotiation with racist
micro-aggressions. A black
scholar, Walker,
has produced a Twitter thread to
record the experiences of black
academics in the UK in these
matters. Their own recordings made
them
'instantly aware of how our
position as employed sociologists
interacted with race. Race is
omnipresent, and neurodiversity is
'continually racialised.
The
extract from interviews just has
Arday confirming this, that
blackness and autism together make
things feel impossible. The
comment says that this led to a
'cathartic discussion' of the ways
in
which their ordinary ways of doing
and becoming sociologists was
racialised, how the existing
literature on race and whiteness
could
unravel their own neurodiversity
and how it was racialised. This
was
inspired by Radulski (2022 this
time), who analysed an activist
social media campaign '
#Takethemaskoff' and analysed 58
tweets about
masking and camouflaging, and
highlighted one tweet, black
autistic
individual who saw the infractions
of whiteness and neurotypical
hegemony and struggle to be
accepted [1!].
Another
Arday comment referred to code
switching, the need to perform a
version of blackness 'they want us
to do — and this comes from
everyone not just white people.
And then we actually have to make
sure we understand what is
happening… And the key thing here
is the
time and energy takes us. Race and
neurodiversity together is
exhausting [again]' (1309) code
switching refers to meeting the
expectations of the dominant white
majority, performing racialised
dialects, for example, and this
'sharply resembles' Fanon on black
skins and white masks, or Dubois
on double consciousness [and
others].
They
don't want to add neurodiversity
as a form of triple consciousness,
but rather to argue that double
consciousness is intensified by
neurodiversity [there is a bit of
a weasel here on 1310, arguing on
the one hand race neurodiversity
and the Academy constitutes a
specific field and requires
specific negotiations, but also
involves a lack of structural and
interpersonal modification?].
It's
a matter of personal violations in
double consciousness which had
deepened by racism and able-ism,
double jeopardy again, especially
in
the academic arena where there is
'the ideal scholar'. The extracted
quote from Lewis bangs on about
authenticity again. Arday talks
about the white lens through which
autism or neurodiversity is
perceived, and how White people
with autism are better accepted.
The
commentary says this shows how
academic excellence is racialised
and whitened [this actually pretty
feeble evidence] and L and B and
others are quoted again for
support. [The same pattern of
assertion,
recognising concepts in the feeble
evidence that is quoted, and then
using the evidence to circle back
and strengthen the concepts]
Overall
they argue that their reflective
dialogue did show the dominance of
whiteness and the marginalisation
of neurodivergence, how racialised
hierarchies of subordination were
generated, how Black people also
have to navigate neurotypical
hegemony, and that this is a
legacy of
black people being presented as
educationally subnormal. The whole
thing is 'a neglected topic of
enquiry'(1311)
There
are implications for what counts
as valuable scholarship. Skaggs
has
argued that value when applied to
race gender and class means a
notion of the proper thing to do
and who is the proper person to do
it. Madriaga is cited again to
argue that academic excellence is
racialised classed and ablist.
Institutional cultures reproduce
what
counts as proper academic
knowledge and this is narrowly
framed.
Lewis quote picks this up in
connection with citation and peer
review, and how neurodivergence
people don't like being reviewed
your
critique because it is especially
intense. She is not being fragile,
she says but 'I literally have a
different brain to you. I feel
things in a much different way'
[blaming the brain here then].
Critique
and peer review thus favour
neurotypical hegemony. Another
Lewis
quote reinforces this and argues
for 'a complete revisit of the
reviewing process. Not to make it
easier but to make the process
more
accustomed to neurodivergence.
This could relate to care,
timings,
communication, delivery —
ultimately things that would
improve the
experience for everyone' (1312).
This
is part of the need for
intellectual fluidity, not
anti-intellectualism. Both authors
have pursued academic credibility
including undertaking peer
reviewed scholarship. They are not
just
personally sensitive, but their
concerns are related to social
justice. Lewis's concerns are
particularly important in the
neoliberal university which offers
insecure and uncertain employment,
and unpleasant form of auditing,
which some have even seen as
boasting
[well you should know!].
'Unprofessional peer review' can
be cruel
and have disproportionate effects,
these can be intensified for black
neurodivergents. An Arday quote
reduces this to the persons who
create
the subjects and disciplines and
who are not 'empathetic of
neurodiversity': most academics
are not aware of the problems and
so the
only answer is more representation
on editorial boards and within
publishing, because present
incumbents 'are not considerate of
how
our brains work differently'
[again]. There is just lack of
sympathy
for black neurodivergents. Lewis
asserts as much in another quote.
Value
assigned to black scholarship
remains inadequate, exclusion is
especially pertinent in sociology.
There is little reason currently
for these exclusions and sociology
should know better [Leading Routes
is cited again]. Scholarly
positions depend on publishing,
research
grants, inclusion on editorial
boards and senior leadership
positions
'in return for security of
employment' [citing himself 2022 —
doesn't apply to him of course]
instead there should be a proper
engagement with social justice
policies, as both authors have
argued.
The myth of meritocracy is
central. A quote from Arday says
this,
confusing 'the myth of meritocracy
and elitism'. He says some
neurodivergent people 'have been
beaten by elitism before they've
even gotten universi' (1313)
[poignant again]. People who have
had a
linear engagement with educational
institutions are more favoured
[Arday 2019]. Failure is
intensified by racialization.
Notions of
academic excellence set by
meritocratic principles and
elitist
principles become a twofold
challenge both neurodivergent
black
scholars and neurotypical ones are
excluded, with the former
experiencing double jeopardy. The
lack of linear academic
progression
is the problem. Black
neurodivergence scholars need to
be understood
as heterogeneous scholars 'against
the backdrop of the combined
history of structured eugenics and
racism' (1314)
On
embracing neurodiversity
They
have linked their lived
experiences to their understanding
of the
structures of neurotypical
hegemony [they agree with
themselves] and have been able to
ask how on
earth they got through [badly
needs answering] The significance
of everyday life is
important, adapting and also
becoming more creative in their
scholarship [that's one way of
putting it]. How have they
adapted?
A
quote from Lewis stresses being
able 'to communicate about society
in
creative ways'. Arday has created
some new spaces for neurodiversity
and ways of subverting the elitist
norms of the Academy. He stresses
in particular the pod cast
Surviving Society.
Both
think they have been the exception
rather than the rule. They have
been a broad coalition including
Leading Routes, the Runnymede
trust,
and the Ubele Initiative which
have democratised knowledge and
styles
of teaching. Arday particularly
likes Surviving Society, and Lewis
agrees and says its shock value is
that it subverts the way things
have been done before. They have
used broadcasting scripting video,
radio public engagement and
educational consultancy,
apparently and
this has led to positive career
progression. They acknowledge they
are the lucky few and they must
carry on questioning. Arday says
there is no need to be celebratory
yet, and both authors remain
sceptical about existing
engagements with neurodiversity,
especially
those that do not counter
neurotypical privilege.
In
conclusion this is been the
sociological informed intervention
about
the social reproduction of elitist
measures of success in academia.
They demonstrated the personal
toll and how it is magnified by
neurodiversity. They face the
everyday challenge of double
jeopardy and
they constantly feel a lack of
appreciation of neurodiversity and
how it becomes racialised. They
feel required to suppress there
are
neurodivergence traits. They need
further interventions to explore
our sociological imaginations and
dialogical knowledge production.
Shilliam
( 2014) in a blog called Black
Academia in Britain argued that
ordinariness as Black scholars
shold be stressed,and they should
demand to be comfortable. Black
neurodiversity must also be
included
in all Black liberation movements.
Black neurodivergents should be
valued for their unique
perceptions
Refs
Hall,
S. (1986). Gramsci’s relevance for
the study of race and ethnicity.
The Journal of Communication
Inquiry, 10(2), 5–27.
https://doi.org/10.1177/019685998601000202
Hall,
S., Critcher, C., Jefferson, T.,
Clarke, J., & Roberts, B.
(1978). Policing the crisis:
Mugging, the
state, and law and order.
Macmillan
Leading
Routes. (n.d.). Leading Routes.
https://leadingroutes.org/
1320
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Leonardo,
Z., & Broderick, A. A. (2011).
Smartness as property: A critical
exploration of inter-sections
between whiteness and disability
studies. Teachers College Record,
113(10), 2206–
2232.
https://doi.org/10.1177/016146811111301008
Madriaga,
M. (2007). Enduring disablism:
Students with dyslexia and their
pathways into UK
higher education and beyond.
Disability & Society, 22(4),
399–412. https://doi.
org/10.1080/09687590701337942
Madriaga,
M., Hanson, K., Kay, H., &
Walker, A. (2011). Marking out
normalcy and disability in higher
education, British Journal of
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901–920.
https://doi.org/
10.1080/01425692.2011.596380
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E. M. (2022). Conceptualising
autistic masking, camouflaging and
neurotypical privilege:
Towards a minority group model of
neurodiversity. Human Development,
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The
Ubele Initiative. (n.d.). The
Ubele Initiative. www.ubele.org
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